@wilderdude Holy heck that is insane, I'm so sorry it took them so long to listen to you and get you a proper diagnosis. I hope the recovery continues to go well and the results are life-changing!
~ Sunset Snuggles
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Found this today 😂
@Runawaycuddles That’s cute. Yep, we are definitely in our body, even if it is not feeling good. Big hugs 🤗
Hope my experience can help everyone, I always love to share because we learn and get ideas that may not have come to us on our own, so:
My body is still recovering from a surgey but I've always had chronic issues. My body changed from easily getting hot and tolerating cold weather well, to the opposite, now I am experiencing a combo. I like to keep my house between 70-72 degrees unless I'm cleaning, then I lower it. I make sure I wear things that are easy to change when I have a moment where I'm too hot (I'll get dizzy, lightheaded, and experience tachycardic systems) until I cool off. I usually warmer bottoms and a lighter top because my knees and mesh will get ache/sting if they're cold. This is the opposite for my top, though I make sure I keep a sweater of jacket around. If I feel my body getting to hot/cold, I'll make some tea and adjust my outfit so that that the issue doesn't prolong itself. Going outside in cold weather: wear thin fleece leggings under your clothes with good, thick socks.
For meds: I keep tylenol on me at all times, I've learned (the hard way) not to wait to long to take it- take moderate amount, wait 45 minutes or so and adjust accordingly.
I hope I helped (:
Apologies for my absence, y'all. Been dealing with a hell of a flare, but at least it got my GP to finally take me seriously? 😅🙃
@wilderdude ugh, I feel that sensation of having the nasal packing pulled out so clearly. I went into vasovagal syncope (passing out), so they had to quickly tilt my chair back to keep me from blacking out altogether. I had the nasal polyp surgery and septum repair done, along with tonsils removed, back in 2011. I wish they'd done it back when I was a kid when I first started getting sick so often. Like you, my ENT was amazed I could breathe at all, because one of my nasal passages was completely occluded and the other was about 75%, and my tonsils were so enlarged they were touching - the size of walnuts in the shell. Surgery recovery was a b*tch as an adult, but the worst of it was over for me after about 7 days.
What they may not have told you, or at least they didn't tell me, is that polyps can come back. My last sinus CT showed I have 3 new ones incubating so I'm going to need another surgery at some point 🤦🏻♀️ Thankfully it does appear that they got all my tonsular tissue out so those haven't grown back. I went from having constant strep throat to never again 🙌
The weird clotty discharge continued for quite some time for me - like a year. It definitely tapered off, but I think because there's suddenly so much space in your sinuses your body tries to fill it while it heals so it keeps shedding like a scab.
@wilderdude. Wow what a story. So glad that you got referred to Stanford. I work with their blood bank routinely and they are awesome from the top to the bottom. It is disheartening it took so long for your diagnosis but better late than never I guess. Breath well and prosper...